T1 Traveler...I Had Issues: Part 1

Howdy all! I just got home from Nosara, Costa Rica with my family. It was an amazing trip, but can one ever travel so far from home without incident? Hell, no! One thing I am glad about is that it was me and not my daughter with the problems. I know myself and can judge from the inside what to do next.

So, I was prepared. Really prepared. Tons of supplies and insulin. Blood ketone meter. Lots of back up, so running out of stuff wasn't an issue.

Playa Pelada, Nosara, Costa Rica by Wendy L. Morgan 

My daughter loves to surf. This is partly why we chose our destination. I had to get it all on camera, so I also went out in the surf. We typically checked our BG before going in and typically took an hours worth of basal to carry us over.

One of those days, we had afternoon surf session and I guess I hadn't had much to eat at all that day. Couple corn tortillas and some avocado. It was hot and I wasn't hungry.

 My BG was 130 going into the water, so I didn't bolus any extra as I was worried I'd go low. By the time we got back to our room, I was feeling high and indeed I was about 300 and felt like I had ketones. I had moderate levels and felt pretty crappy for an hour or two. I got my BG down and realized that that was a pretty weird episode. I reviewed my day and wondered if my lack of food and seriously increased activity, along with a hour and a half of no insulin made my ketones spike.

Unfortunately, that wondering didn't stick. Three days later, we had a morning surf session and I did the same things. No bolus for basal. No breakfast. We were also out there longer than I planned.  Two hours later I stood on that beautiful beach wrapped in a towel and felt the ache of ketones spread across my chest, across my shoulders and into my back. I felt nauseous and my body felt sick. It came upon me incredibly fast!

We got back to the room and I began to drink a ton of water. This was hard and it felt very serious. I was in a tiny village in Costa Rica. I checked my BG and it was 250 with 1.2 blood ketones, so I book used. Then 20 minutes later I was 350 and at 1.9.

 I had piled a towel on the table in front of me to lay on because I was afraid to move.  I laid my head down between sips of water. I took a total of 15 units with three different injections, then worried I'd taken too much. I was worried I'd need an IV. I was worried. Period.

I drank and drank and tried to Google (we had wifi in our room) "DKA self care," and got results that indicated I could really be in trouble. That's when I began trying to reach a diabetes educator friend on Facebook messages.

 I typed by desperate plea for guidance and realized I was killing time. As I typed, I think I even wrote that I was waiting for the water and insulin to work and trying not to puke. I needed to be doing something to help myself, so writing to her was it.

She responded promptly! She asked if I had Zofran, the anti-nausea medication, and of course, I did! She suggested I take that to keep from throwing up all the water I'd drunk.

 By the time she responded everything was beginning to work, so I didn't taken the drug, but knowing I was doing everything right was a big relief. I asked her if I should take more insulin, but she said wait two hours and see where I am.

I trended slowly down over the next two hours and my ketones dropped to 0.2. This was great news, but that whole thing scared the holy crap out of me. Ketones from exercise, lack of food and no basal insulin, was new to me.

Most the websites I found during my Google-medical-care-abroad session talked about such basic stuff like don't exercise with high BG or ketones, but nothing described what I had just done to myself.

I ate a big lunch and loaded up for future trips to the water with plenty of food and insulin on board. Lesson learned 30 years into this pain in the ass disease!

Next post, my flight home! Diabetes adventure número dos!

Medtronic Trial: Enlite Sensor Questions

Still a little bummed I didn't get the Minimed Veo, but I've been thinking more and more about the Enlite Continuous Glucose Monitor Sensor and what it's introduction might mean.

Well, it would mean freedom from harpoons, but really, technologically, it would mean a pump upgrade. Rumor has it they would use the Revel in the US, not the official Veo from Europe, but that wouldn't mean we get to keep our current Revel model.

The current Revel's are programed for the Minilink CGM with a sensor life of three days. The Enlite is six days.

Also, I wonder if they will upgrade the transmitter technology. I'm not thinking so, because I still have issues with weak signals on my trial version. I really need a new transmitter for my personal system, but I don't think I want to upgrade until all of this stuff comes out.

While I totally appreciate the trail on the Veo, and I want it bad, I more than anything want the Enlite sensors for me and my 11 year old. However, I just bet the next major upgrade offered is a combo of a new "Revel" (with Low Glucose Suspend) and the Enlite together. I guess I initially had this thought that I could just order new sensors when they came out, and maybe a new transmitter for extra juice, but that is pretty wishful thinking.

I have amazing insurance (my husband works part-time for UPS and coverage is KILLER), so I'm actually not worried about cost, but this might mean we have to wait for both to be FDA approved, which scares me. I'm eternally sick of waiting on the FDA for new technology. Oh! So weary!

Will you upgrade if a new pump and new sensor system comes out as a packaged deal?

Medtronic Trial: Minimed Enlite Sensor ROCKS! So Tiny and Comfortable!

How do I love thee, Minimed Enlite Trail Sensor? Let me count the ways...

Seriously folks, I love this sensor. I've had it on since Monday and I have had some hard diabetes days. I'll get to that in another post, but so far, I can't feel a thing and it works like a charm.

I'm not going to go into how to put it on, because all of that is in a video on the Medtronic website.

Some things I love about the sensor:

• 69% reduction in size compared to previous sensor. We are talking a HUGE difference in size, which meant a HUGE difference in needle required to plunge the thing in your body.
• Adhesive tab that holds the Minilink Transmitter in place.
• Specially designed adhesive that slips over the sensor head before you put on the Minilink. Although, it is super soft and easily gets stuck together, so you have to be quick and hold it on all sides.
• Can't feel a thing. Going in, or wearing it. Nothing. Completely comfortable.
• Six days of wear.

Some things I love about the Serter (although I think that is a silly name):

• Hidden needle.
• Easy enough to load, but requires thought.
• Needle retracts after insertion and you don't have enormous needles to dispose.
• I like that you press the button to unlock the sensor, then let go of the button to release the needle and sensor. Don't know why this matters, but it feels less scary that pressing the button and waiting for the scary click. I only have done this once in the trial office, so I'll fill you in on my next experience.

Other than those things above, it works just like the previous sensor on the pump. Same requirements for calibration, but they are recommending we calibrate multiple (as many as four) times per day, but only two are required for wear. Another thing, I think I can get this on my daughter! Really, this is huge.

Do you wear the Medtronic CGM now? What do you love most and what are your biggest beefs?

Participating in Medtronic Minimed VEO and Enlite CGM SensorTrial

Yippee! I am going to participate in a four to five month trial that may put me on the Medtronic Minimed VEO, which has been available in Europe. The thing that makes me most giddy is the opportunity to try the new Continuous Glucose Sensors, called Enlite. YAY!

The Enlite CGM Sensor can be worn for 6 days and has a much different profile in terms of the size of the insertion needle and the inserter. YAY!

The VEO offers a Low Glucose Suspend (LGS) feature to halt insulin delivery when the CGM senses you are low. Both devices are long overdue to the American Market, so if I can help speed this sucker to market, SIGN ME UP!

I want this technology for me, but mostly I want it for my daughter. She is 11 now and middle school is so trying for a T1 kid. I can't hold her hand anymore, so I'd love it if the technology would give her more support.

I'll post more after my first appointment. Of course, there are lots of hurdles to qualifying, so cross your fingers for me!

Medtronic Minimed MySentry $2,400!

I just got off the phone with Minimed and was pretty surprised to find the newly announced Minimed MySentry costs $2,400 and is not covered by insurance. It is cool, but I think I am more surprised by the lack of insurance coverage than the price. Hmm. Not surprised, but disappointed. Do you know what would have been smart, to annouce the upcoming release with the price, so we could get the sucker budgeted into our flexible spending accounts. The year just started and I've already ordered $500 in diabetes related supplies. There is no way I can forgo $2400 of my yearly allotment to buy this through flexible spending, but I might have budgeted for it in October. Shame!

I would love to have this thing, except I will never get the existing Minimed CGM on my daughter. I am so glad they are working on new products, but they REALLY need to fix the harpoon.

Really, what I need is an app that will read my daughters CGM or even her blood glucose meter and I will get alerts from it or be able to check on her when she is away.

Medtronic makes good products and really are industry leaders, but I am so incredibly sick of waiting for upgrades and better technology.

It is painful to wait for Medtronic Minimed to move and the MySentry product is a huge advancement (that I was promised five or six years ago), but they need to pick up the pace.

Oh! my goodness it is painful to wait. I swear the blood glucose monitors are exactly the same as I had in 1983, except 40 percent smaller and 40 seconds faster. Painful!

What are you waiting to see?

My 10 Year Old is Now Hooked Up: CGM

Well, we pulled the trigger and got our daughter the upgrade for her Minimed insulin pump to a Revel with the Continuous Glucose Monitor. I warned her it was coming, but I was not prepared for the resistance to putting the sucker on her.

The pump is great, the CGM sensors, not so much. They are freakin' huge needles and it took me one hour to convince her to let me put it on her. We iced her bum, we talked, we cajoled, we pleaded, we reasoned, but the only reason she consented was because we had a birthday party to go to, the clock was ticking and I refused to back down.

We had to establish the rules of engagement. Three kisses, then I had to count to three, but I couldn't touch her with the inserter until three. Then I had to say "ok" before I pushed the button.

She did it and cried like a baby. Said it hurt like hell. It bled a little, but she said it hurt for a good 20 minutes, but she was fine by the time we reached the party.

We didn't start the sensor until after the party and the sensor had its wick wet, so calibration was immediate. She thought it was pretty cool when the blood sugar numbers finally popped up on the screen of her pump.

She watched it through the afternoon and into evening. We'd ask, "Have you taken your blood sugar lately?" with a smile and she would whip out her pump and tell us the number.

We calibrated at bedtime, but she lost the sensor around 11:00 pm. I positioned it closer to her Minilink Transmitter and she was fine, until 3:00 am. She came in and said she was high, so I wanted to check against her meter and it was off. CGM said 315, meter said 230. That was significant enough for me, because the calibration had about the same difference earlier in the evening. I sat in the dark and decided to turn off the CGM and restart the sensor.

By morning things seemed to match, but she was still running high. She took some Advair for breathing difficulties and I know that was shooting her blood sugars up. She called me from school and said the thing was beeping all morning. High blood sugars, missed bolus warnings, even though she bolused. I reminded her it is going to take time to balance her insulin levels to match what is happening in her body. When that happens, she hopefully won't hear any beeps at all .

More in my next post, but I'm not sure I will be able to convince her to put that sensor on again. We'll see. More later.

Minimed Revel: Jury still out, but underwhelmed

I hate to judge something without ample time to use it, but I am pretty underwhelmed with the Medtronic Minimed Revel and CGM package. I have been using the Medtronic Minilink CGM since it came out, ordering a new one after my other konked out after 18 months.

I had the 722 Minimed Paradigm pump and it has worked really well for me. But, back when I started this blog, I was testing the Freestyle Navigator. I loved it; for the most part.


I LOVED the predicative alarms. I actually stopped lows before I had them. What could be better. So when the Revel promised predictive alarms, I thought, "Hell ya!"


I have received predictive alarms, but many came when I was already low or moments from the threshold. I'm not 100 percent sure exactly what was happening with many of these, because I don't tend to take my BS when I wear the CGM (slap my wrist). It has been really accurate for me the majority of the time. Not perfect, but really good. So several alarms I got were maybe five minutes before the actual low alarm, but I don't know what my actual BS was.


So, I decided to check sugars when I got the alarm and the first time I did this I got the Predicted Low alarm and I was 55 mg/dl. This thing is supposed to warn me 30 minutes before a low and I was already 55. This happened several times with similar results.

Benefit of the doubt wants me to say, "I need to get used to it," "its a new machine, give it a break," but a big part of me is saying send it back.


It isn't any more helpful that the 722 at this point, it just has more alarms.

OH! Big issue, I can't hear the freakin' alarms at night.

I went for two hours with No Delivery and I didn't hear or feel a thing. The alarms were not great to begin with on the 722, but they were WAY too soft on the Revel. They have different low and high chimes, but they are not better and sound softer to me because they are so high pitched.

So, I haven't put a sensor on for two days because it makes me tired thinking about verifying the readings. Easier not to know, but I better figure this out soon, I'm running out of decision time.

Anyone using the Revel have some thoughts to share? I'd love input.

Woke up thinking about diabetes complications at 3 a.m.

This morning I had a first; worry about the future impact of complications on my body. Perhaps it is the pending New Year and the resolutions that always hover. Perhaps it was my husband, who said that he is sick of sitting in front of the computer and wants to get moving. Perhaps it is the Wii Fit and the fun games that are making me think a lot more about my diabetes and my overall health.

I have three months left of my 39th year. I was in the bathroom this morning and wondered if I need a mammogram now. Making my poached egg, I scrapped off half the butter I was about to use.

I put my CGM on four days ago for the first time in months. I thought the transmitter was about to konk out on me when I had a couple iffy sensors and bad readings, so I tucked it away and feigned self-control by "knowing my body." I have to say though, my blood sugars are darned normal most the time and the CGM confirms this for me nicely.

So, in bed this morning around 3:00 a.m., I started thinking about how my body was aching; really in need of a massage (which I got for Christmas). My ankle was stiff and the more I twisted it and stretched it to try to loosen up, the more I realized I don't like to be in pain, or really even discomfort, AND I don't like taking pills to make me feel better. This led to thoughts about how I'm going to feel if I am in pain all the time because of complications. I actually thought. "I'm not sure if I could live with that." I thought, I hope I get killed by a bus or freak train collision rather than suffer as I get older.
Don't worry, I'm not imbalanced or depressed, but it made me think about how much control I take over my health and life. Where does diabetes care fit into my priorities. To be honest, not very high on the list. My health fits in right about where most people fit it in, between kids activities, work, doing dishes and beating myself up over the things I *should* be doing.

I don't spend an inordinate amount of time beating myself up; gave that up years ago, but I have slipped to the other side to virtual complacence. Don't think that is the best place to be either.

My daughter takes most of my energy, time and stamina. Her diabetes takes the rest. How do I teach a kid to make the right choices, when they aren't a priority for me?

So, the Wii Fit really kicks some butt. I ought do be doing yoga now, but I just wanted to start a dialog about reality, not fear. A little voice in me is saying that I should be more mindful, thoughtful about my choices. That self-care is a high priority, no matter my other obligations. I think the example of the oxygen mask on the airplane is perfect here. If I don't get air first, how can I help my child?

Minimed Sensor Backorder --four business days. Thoughts on CGM and my kid.

I ordered my Sensors for my Minimed Real-time CGM on Halloween, Wednesday,October 31 and got notification today that they were being overnighted. That was less than one week and I ordered a box of ten.

I'm pretty happy about this. Life without readings is basically life, but with no idea what your blood sugar is. Yes, I am supposed to be taking it, but I have gotten so comfortable wearing the sensor all the time, I just can't get back to my meter.

I had a sensor that was really rough on me as my last sensor. I bled like HELL and hurt when I put it in. I read on a forum that the ones that tend to bleed have had longer life, so I crossed my fingers and hoped, but it failed after four days and I wasn't going to mess with it. I just wanted it OUT!

I am still bruised and I took it out almost two weeks ago.

Not sure why this happened, but thankfully is was the first in 30 sensors to do this kind of damage.

I've decided to wait on the CGM for my seven year-old girl. I have come to find out that it isn't the insertion that worries her most (although it absolutely does), but it is the alarms going off all the time. You know what? That happens frequently. It will really extend the amount of time she is thinking or being reminded about diabetes, which is a lot and for right now, in this first generation of devices, I am willing to let her have some space with it.

Also, when the CGM is made so that I get the alarms on my mobile device, that will be a whole other story. It is a lot of responsibility for a seven year old to deal with the various alarms. Trust me I TOTALLY understand the benefits for her and me, but for now...we are going to wait.

Tape is Necessary on CGM Transmitter--I just flushed $35 down the toilet

So, I put in a new Minimed Sensor two nights ago. I put it on my rear, so I had to get my hubby to help me because I don't like it too high on my hip.

I forgot to put on my overbandage (Tegaderm) and I thought about it several times, but I needed hubby to do this too, and he was never around when I thought about it.

I was very careful getting dressed and going to the restroom, but this morning I was bending over to pick up the recycling and a seam in my jeans caught just under the edge of the sensor and pull it right off my fanny.

Oh well!

Symlin and CGM--Wow! This is SO much easier

You know I tried to use Symlin a couple years ago, before the Continuous Glucose Monitor, and it was HARD. I got low...really low and the lows are tough to treat, but I recently decided to give it a try again now that I have the Minimed Realtime Continuous Glucose Monitor.

I am 38 and my insulin requirements have increased significantly in the past year and I am also gaining weight as a result. This does not make me happy, so I'm trying Symlin (which I hear is now FDA approved in a pen).

I have been on Symlin for about a month, using it once or so a day. It is NOT convenient to carry it around with you when you have been reliant on the CGM and your pump, so I usually get Symlin when I am at home eating.

I have to say, it is miraculous to see how it impacts my blood sugars post meal. It works well, but the best is that I can catch lows early and see exactly how it impacts my readings for hours after.

It has been a long while since I posted regularly, but in case you weren't sure, I LOVE having a CGM and I can't imagine life without it. I will live longer and I will see my child grow because I know answer to the only question that really matters with diabetes-- "What's your blood sugar?"

Minimed CGM Update: I've Got a Secret

So summer has been busy and posting fell way off my radar, but I do have a few things to share. First, the CGM makes my life much easier, however it also can drive me nuts. Sometimes I wish I could go back to ignoring my diabetes; "feeling" my way through. I knew I wasn't high and I knew I wasn't low, but I tended to hang in the 150-220 range and that isn't good for anyone all the time.

So here I am, enlightened and technologically hooked up.

For the second time, I tried to insert the Minimed sensor in my upper rear; I love it (day one). It wasn't uncomfortable when I slept, but I was extra cautious when I turned over last night. I really don't prefer to do infusion sets there either, I am a stomach inserter. My daughter is a butt cheek inserter and to show her that the sensor didn't hurt, I had to do it myself.

I have to say, that reaching around to hold the sensor in place with two hands was challenging, but I managed. Next time, I will get my husband to help. The first time I tried to do the sensor in my rear, it went poorly. I did it too high on my hip and it hurt, a lot, so I pulled it out. $35 down the toilet.

So now for my not so secret, secret: I now insert the sensor at night, attach the Minilink transmitter and go to bed. I do not turn it on; I just let it be until morning. When I wake up and my blood sugars are stable, I start the new sensor and within seconds, I get the BG Meter Now calibration request. This lets me skip the first two hour calibration and that is a life/schedule saver for me.

One of the biggest irritations for me is the constant alarms over something or other (which is because the CGM is doing its job), but the calibration alarms have always felt inconvenient. Before, when I would decide to put the sensor on, I would have to think hard about where I was going to be when the first two hour calibration would be required. Usually, I would be in a meeting. Being beeped at, while talking business, then stopping to either snooze the blessed alarm or calibrate, drove me nuts. That is fixed with the evening insertion.

I still have to contend with the six hour calibration, but that is mostly no big deal.

Accuracy is mostly good; within 10mg/dl. I've contended with a few situations that threw me for a loop, but this thing isn't perfect.

Oh! One shocker. My A1C did not come down. It was the same as last time. I have not been vigilantly tweaking my numbers, I have just been preventing lows and highs. After all, I spend most my diabetes vigilance managing my kids diabetes and tend to just ride mine out, but I was shocked that it wasn't lower. I have read all over the place that the CGM isn't necessarily going to lower A1C's, but for me it has reduced the serious fluctuations in sugars. Rather than being high then low, I am more in the middle. I tightened my High alarm from 275 (yes, silly me) to 200. That should help.

I also decided to give Symlin a try again. Haven' t ordered it yet, but will post when I do. I have been gaining weight and increasing my insulin rates with no changes in my diet. I guess age and insulin resistance is the culprit. Not pleased about either, but at least there are options to help with both!

Howdy Camp Bluebonnet Families!

I wanted to gove a shout out to all my new friends from Camp Bluebonnet, a camp for children with diabetes in Central Texas. This week was a blast, even as rain poured on our last day of camp. I had so much fun sharing with folks interested in the Minimed Real-time System. Lot's of interest.

Have a great summer friends and stay tuned for more info on the Minimed CGMS...I heard they are close to having one site for both the Sensor and the Infusion set; close as in maybe a year.

Feel free to post a comment and say howdy! I'd love to hear from you guys!

Reminder: Freestyle Navigator Info in Archives

I was at Camp Bluebonnet today with my daughter and a bunch of great parents and their kids with diabetes and I was reminded of how grateful I am to not only have a CGM, but to have had the experience with the Navigator CGM that is still not released yet. For those of you just tuning in to my blog, and are interested in learning more about the Freestyle Navigator Continuous Glucose Monitor to be released by Abbott Diabetes Care later this year (crossed fingers), I have chronicled three months of trials in the first part of my blog archive.

Keep in mind, that my comments and photos were of a version that isn't necessarily going to be released, and the things that will most likely change are size and calibration times. I love my Minimed Real-Time, but the Navigator was awesome when the CGM projected lows or highs -- really quite accurately. I look forward to the day I can upgrade to the latest technology, but I count my blessings every day I have the sophisticated technology I do have.

There will always be a tomorrow, as with computer technology, but to utilize the best the market currently offers is an awesome experience and My A1C is the better for it. Next steps are to get this and all CGMS covered by insurance, but for now I count my lucky stars...Oh! my blood sugar right now is 138 post dinner.

ARGH! Spoke too soon! Bad Sensor Day Eight!

About an hour after I posted my last note, I got two "Cal Errors" and a "Bad Sensor."

I am ok with six or seven days, but I am really challenged to keep it on longer. Not becuase I have to, but becuase I love beating the system.

Try, try again!

How to Get Past Sensor Day 7--Minimed CGM Update

I am once again grateful to have this CGM AND I have figured out (with the help of a Minimed source) how to extend the life of the sensor beyond seven days! Once you see the "Sensor End" on the sixth day, the Minilink transmitter needs to be disconnected and charged 20 minutes or so. Then it can be reconnected and "Start Sensor."

Yea! So, I am on day eight with no irritation and accurate readings. I have promised to do comparisons of reading vs. finger tests, but I don't check my finger blood very often (bad girl).

My daughter is having a blast at Camp Sweeney, but I have to leave tonight and stay in Dallas, so I can go get her Friday morning. I have talked to her "Big Sister" at camp everyday, except today and she is well over her home sickness and doing really well.

Things are good--Minimed Real-time working well

It has been awhile since I've written! I am happy to report no issues with the Minimed Real-Time System. It is working well, I just wish I could get my blood sugars down. It surprises me each and every month how steeply my blood sugars climb with PMS. It is shocking really. Last week I was 100...almost all the time, this week I can't get much below 200 and that is with a significant increase in my basal pattern.

The sensors on this thing have NOT lasted me more than seven days. I get a bad sensor reading on the seventh day almost every time.

My daughter is going away to a camp for kids with diabetes. This is her first time and she is really nervous, but I think she'll have a blast. I missed out on camps as a kid with type one. I am sad about that, but hopefully my girl will have enough fun for the both of us.

She put on the camp questionnaire that her goals at camp are to have a lot of fun and to learn how to measure her own food. How cute is that!

Minimed REAL-Time Minilink Doing Well--Need Advice on Longer Wear!

OK, so I haven't posted in a long time about the Minilink, but things are going really well. The only problem I am having is that I can't get the sensor to last more than 7 days. At the sensor end warning on day three, I unplug the minilink and recharge it for a couple hours. At the second Sensor End warning, I try the same thing, but I get two Cal Errors after I reconnect and then a Bad Sensor. Any advice on moving past this would be appreciated.

Things I am doing:

• I have tried inserting the sensor at a deeper angle than 45, I put the sensor in my stomach (tried my hip and for me, it hurt like hell, but I hate infusion sets there, too).
• I let the sensor warm up about 30 minutes before I insert it
• Once it is inserted, I wait about 15 minutes before connecting the Minilink(to wet the cannula)
• I recharge the battery at each "Sensor End" which is every three days

Regarding accuracy. I have found this to be really accurate. I have discrepancies occasionally, but not on the norm. Overall, I am very happy with this and if I wasn't wearing it, I wouldn't know what my blood sugars are. As a busy mom, it is SO easy for me to blow off regular blood sugar checks, so this CGM is saving me (I do have a very good sense of whether I am high or low, but I would prefer to not be 180 all day, which is why I got this).

Send your advice my way on how you get longer sensor wear. I have a friend (medical professional) who has had three weeks of wear (still on her), but I have already tried everything she is doing.

Minimed REAL-Time CGM Back on Track / Camp for T1 Kids

With the exception of one weird and whacked out reading comparison, my blood sugars have been matching very closely with the finger sticks. I am relieved! My daughter just got her pump upgrade and we changed from purple to blue, which makes her really happy. I am being patient, but I hope she give the CGM a try. She can try mine out before we buy.

Yesterday we had the pleasure of meeting two other families living with T1. Moms with kids going to Camp Sweeney decided on a play date before the kids head off to camp and we met at Central Market (a lovely grocery with outdoor play area and great live music). The three girls played on the playscape and moms chatted about all kinds of stuff, but the focus was on diabetes and how we handle so many of the complicated situations we have with little ones with T1.

My girl was pretty nervous; she is six and a half and the other girls are eight, but they were so sweet and asked my girl if she wanted to play. Last night she told me how much she loved meeting the girls and one of the moms is pulling together another group before the one week mini-session at Camp Sweeney (Camp Sweeney is an overnight camp for children with diabetes that lasts one week for the mini-session and three weeks for the regular sessions). My girl surprised me when she said she wanted to attend.

Anyway, it is so nice to be developing a community of friendships with kids who have T1. My daughter also attends Camp Bluebonnet (also for kids with diabetes), which is a day camp about an hour from Austin and that is another place where these kids will grow their friendships. When I was diagnosed at 14, I knew only one kid with T1 and she abused her body. She gave up trying early in her adolescence and I didn’t like to be around her, because her attitude was so bad. I never got the chance to go to Camp Sweeney and I’m a little upset my parents didn’t encourage me to go. I didn’t understand at the time how cool it would be to hang out with kids in my same position.

Anyway, my daughter has the opportunity and I hope it grows healthier attitudes and wonderful friendships.

Minimed CGM Lost Sensor AGAIN! Friend has Same Problems

I met the loveliest woman at the Minimed REAL-Time Pump and CGM training on Monday and we have been e-mailing each other about our experiences with this thing. Since we put on the sensors at the doctors office on Monday we have both experienced a some really wide ranges between finger sticks and the readings on the CGM. For instance I tested 261 and the CGM said 140. I even did a correction for the 261 and I saw no change on the CGM.

She had the same issue, finger test 227, CGM 147 with two down arrows even. She reported two Cal Errors and a Bad Sensor yesterday, so she switched out everything feeling a little frustrated that the sensor only lasted three days. Today she was working out (with new sensor) and the CGM kept giving her LOW alarms showing a blood sugar of 40 for an hour. She tested every ten minutes while this was happening and got finger test readings of 140-240. What gives?

Today is sensor day four for me and I got two Cal Errors and a Bad Sensor. I wonder if we have a bad batch of sensors?

More later...